Part 4.6 - Jacqueline Marie Zbur Rare Disease Advisory Council

California Health and Safety Code — §§ 124965-124965.14

Sections (4)

Added by Stats. 2024, Ch. 726, Sec. 2. (AB 2613) Effective January 1, 2025. Repealed as of January 1, 2029, pursuant to Section 124965.14.

(a)Upon appropriation by the Legislature, there is established, within the California Health and Human Services Agency, the Jacqueline Marie Zbur Rare Disease Advisory Council. The council is advisory in nature and shall have no regulatory authority.
(b)Unless the context requires otherwise, for purposes of this part, the following definitions shall apply:
(1)“Advisory council” or “council” means the Jacqueline Marie Zbur Rare

Disease Advisory Council.

(2)“Rare disease” has the same meaning as provided in Section 360bb of Title 21 of the United States Code, or its successor.

Added by Stats. 2024, Ch. 726, Sec. 2. (AB 2613) Effective January 1, 2025. Repealed as of January 1, 2029, pursuant to Section 124965.14.

The advisory council shall apply for, and accept, any grant of funds from the federal government, private foundations, or other sources that may be available for programs related to rare diseases. The advisory council shall not accept any funds from the employer of a currently seated council member.

Added by Stats. 2024, Ch. 726, Sec. 2. (AB 2613) Effective January 1, 2025. Repealed as of January 1, 2029, pursuant to Section 124965.14.

The advisory council shall report on the activities of the advisory council and its findings and recommendations on issues relating to the quality and cost-effectiveness of, and access to, treatment and services provided to persons with rare diseases in this state on

the advisory council’s web page.

Added by Stats. 2024, Ch. 726, Sec. 2. (AB 2613) Effective January 1, 2025. Repealed as of January 1, 2029, by its own provisions. Note: Repeal affects Part 4.6, commencing with Sec. 124965.

This part shall remain in effect only until January 1, 2029, and as of that date is repealed.